Programs & Intiatives

Voluntary Health Organizations

Voluntary Health Organizations

In 2006, NDRI launched the National Rare Disease Partnership (NRDP) of Voluntary Health Organizations (VHO) that advocate for research into specific rare diseases. VHOs provide important links between patients with rare diseases and researchers of those disorders. Many individuals with rare diseases are more than willing to donate following surgery, or after death, as a way of furthering research on these rare diseases.

NDRI is a Not-For-Profit (501c3) Corporation.