Resources

Funding Partners

NDRI’s work would not be possible without generous financial support from federal programs and philanthropic organizations dedicated to patient advocacy.

Some of these funding partners, including the National Institutes of Health, have supported us for decades in recognition of the critical role that human tissues and organs play in advancing biomedical research.

 

ALS Boston VA Brain Bank
To advance research on amyotrophic lateral sclerosis (ALS), often called Lou Gehrig’s disease, the Department of Veterans Affairs Biorepository Brain Bank (VABBB) collects, processes, stores and distributes ALS biospecimens for future scientific studies. NDRI helps VABBB obtain the samples they need to build the biorepository, or human tissue bank.

Bay Area Lyme Disease Foundation
Lyme disease is a tick-borne infection caused by Borrelia burgdorferi bacteria. The Centers for Disease Control and Prevention (CDC) estimates that each year as many as 300,000 people in the United States are diagnosed with Lyme disease. NDRI is partnering with the Bay Area Lyme Foundation and its National Lyme Disease Biobank to build a system for collecting and banking a diverse group of biospecimens for use by the Lyme disease research community.

Children’s Tumor Foundation
The Children’s Tumor Foundation (CTF) is dedicated to improving the health and well-being of individuals and families affected by neurofibromatosis (NF) for which treatments don’t exist because the disease is unpredictable and affects each patient differently. CTF established the NF Registry in an effort to collect specimens from surgical procedures or post-mortem so that qualified researchers have access to the tools they need to find therapies for the disease. Patients in the registry are asked to give consent for the donation of organs, tissues and clinical data for the CTF project. NDRI coordinates the recovery and provision of the organs and tissues to develop the biorepository and support research into new therapies for NF. 

 

Cystic Fibrosis Foundation
The Cystic Fibrosis (CF) Foundation is committed to finding a cure for CF. Since 2004, the CF Foundation has funded NDRI to provide a reliable source of human tissues from CF donors with different genotypes to facilitate research and drug development. NDRI has continuously met those needs by providing countless high-quality biospecimens, which the foundation can use in studies to further promote individualized treatment and specialized care for individuals affected by the disease.

National ALS Biorepository Pilot Study - Agency for Toxic Substances and Disease Registry (ATSDR)
NDRI has a special focus on ALS through collaborations with the National ALS Biorepository. McKing Consulting Corporation contracted NDRI to participate in a pilot study to explore methods for collecting and banking brain tissues from patients enrolled in the National ALS Registry, maintained by the federal Agency for Toxic Substances and Disease Registry (ATSDR). The National ALS Biorepository Pilot Study chose NDRI based on our proven experience and established systems for recovering tissues from deceased donors nationwide. We maintain a database of ALS patients who have consented to donate tissue, as well as next-to-kin information to allow timely recovery of tissue.

The pilot study ended in September 2015. Based on the results ATSDR moved forward with establishing the biorepository. Today, NDRI is leading the collection of biospecimens from those donors to develop the biorepository to support ALS research.

National Institutes of Health
Established in 1987, NDRI's Human Tissues and Organs for Research Resource (HTORR) Program has been funded by The National Institutes of Health (NIH) to support research programs across multiple disciplines. It is through the HTORR program that NDRI provides biomedical investigators with donated normal and diseased human tissues and organs recovered from a diverse donor pool using customized procurement, processing, and preservation and distribution protocols. Below is a list of NIH institutes that support the HTORR program as well as supplemental programs specifically focused on Alzheimer’s disease, Autism Spectrum Disorder (ASD) and HIV/AIDS research.

Office of the Director
National Human Genome Research Institute (NHGRI)
National Institutes of Mental Health (NIMH)
National Institute of Allergy and Infectious Diseases (NIAID)
National Institutes of Neurological Disease and Stroke (NINDS)
National Heart, Lung, and Blood Institute (NHLBI)
National Eye Institute (NEI)
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAIMS)

For more infromation on NDRI's collaboration with the NIH, visit: www.ndriresource.org/NIHHTORR

 

NDRI is a Not-For-Profit (501c3) Corporation.