Foundations

Foundations and Patient Advocacy Groups working with NDRI provide a unique and powerful opportunity to their patient population, by allowing them to contribute to the science that leads to the discovery of drug therapies and answers questions about human disorders and diseases.

Patients and their family members can contribute to science by providing a “living” donation, (blood sample, urine, explanted tissue, or organ) or through registering to make a post-mortem gift and leave a legacy to help advance scientific discoveries.

Pharmaceutical companies and investigators are increasingly working with Foundations and Patient Advocacy Groups to obtain data sets, registry information, and support for drug development and identifying causes of disease. Using human tissue during drug development can help pharmaceutical companies more rapidly:

  • Identify and validate drug targets
  • Identify drug mechanisms
  • Develop screening tests for biomarkers associated with certain subtypes of disease
  • Group patient based on their genetic characteristics and likelihood of positive response for testing of new drugs
  • Group patients based on the “biomarkers” of their disease to determine which treatment is appropriate

“NDRI is a critical partner for tissue collection, storage, and distribution in support of LAM research. With NDRI’s expertise, resources, and collaborative efforts, LAM scientists access irreplaceable fresh and fixed tissue samples to advance understanding of LAM Disease.”

Susan E. Sherman, MHA, Former Chief Executive Officer, The LAM Foundation

Whether you are a Foundation and/or a Patient Advocacy Group with existing relationships to pharmaceutical companies and investigators, or in early stages of developing a research program, NDRI can help you achieve your research goals through our many services.

Patient Advocacy Groups and Foundations we have collaborated with include:


The Cystic Fibrosis (CF) Foundation is committed to finding a cure for CF. Since 2004, the CF Foundation has partnered with NDRI to provide a reliable source of human tissues from CF donors to facilitate CF research and drug development.


The LAM Tissue Collection Program is a collaborative initiative of the LAM Foundation and the National Disease Research Interchange (NDRI). We are collecting surgical tissue samples and detailed information from LAM patients to aid in accelerating research efforts related to this disease.


Lyme disease is a tick-borne infection caused by Borrelia burgdorferi bacteria. NDRI is partnering with Bay Area Lyme Foundation and Lyme Disease Biobank to build a system for collecting and biobanking a diverse group of biospecimens from donors with Lyme disease for use by the Lyme disease research community.

To learn more about the LDB Tissue Collection Program click here.

To learn more contact Strategic Initiatives:
Email partnering@ndriresource.org or call 800-222-NDRI (6374), ext. 0266

Or fill out a partnership application

Foundations and Patient Advocacy Groups working with NDRI provide a unique and powerful opportunity to their patient population, by allowing them to contribute to the science that leads to the discovery of drug therapies and answers questions about human disorders and diseases.

Patients and their family members can contribute to science by providing a “living” donation, (blood sample, urine, explanted tissue, or organ) or through registering to make a post-mortem gift and leave a legacy to help advance scientific discoveries.

Pharmaceutical companies and investigators are increasingly working with Foundations and Patient Advocacy Groups to obtain data sets, registry information, and support for drug development and identifying causes of disease. Using human tissue during drug development can help pharmaceutical companies more rapidly:

  • Identify and validate drug targets
  • Identify drug mechanisms
  • Develop screening tests for biomarkers associated with certain subtypes of disease
  • Group patient based on their genetic characteristics and likelihood of positive response for testing of new drugs
  • Group patients based on the “biomarkers” of their disease to determine which treatment is appropriate

“NDRI is a critical partner for tissue collection, storage, and distribution in support of LAM research. With NDRI’s expertise, resources, and collaborative efforts, LAM scientists access irreplaceable fresh and fixed tissue samples to advance understanding of LAM Disease.”

Susan E. Sherman, MHA, Former Chief Executive Officer, The LAM Foundation

Whether you are a Foundation and/or a Patient Advocacy Group with existing relationships to pharmaceutical companies and investigators, or in early stages of developing a research program, NDRI can help you achieve your research goals through our many services.

Patient Advocacy Groups and Foundations we have collaborated with include:


The Cystic Fibrosis (CF) Foundation is committed to finding a cure for CF. Since 2004, the CF Foundation has partnered with NDRI to provide a reliable source of human tissues from CF donors to facilitate CF research and drug development.


The LAM Tissue Collection Program is a collaborative initiative of the LAM Foundation and the National Disease Research Interchange (NDRI). We are collecting surgical tissue samples and detailed information from LAM patients to aid in accelerating research efforts related to this disease.


Lyme disease is a tick-borne infection caused by Borrelia burgdorferi bacteria. NDRI is partnering with Bay Area Lyme Foundation and Lyme Disease Biobank to build a system for collecting and biobanking a diverse group of biospecimens from donors with Lyme disease for use by the Lyme disease research community.

To learn more about the LDB Tissue Collection Program click here.

To learn more contact Strategic Initiatives:
Email partnering@ndriresource.org or call 800-222-NDRI (6374), ext. 266

Or fill out a partnership application