Lyme Disease Biobank Tissue Program

The Lyme Disease Tissue Collection Program is a collaborative initiative of the Lyme Disease Biobank (LDB), National Disease Research Interchange (NDRI), and MyLymeData Patient Registry. We are collecting surgical and post-mortem tissue samples and detailed information from people with Lyme disease and other tick-borne infections to aid in accelerating research efforts related to these diseases.

  • These tissue samples will be made available to approved researchers. These tissues provide the medical community with a much-needed resource to better understand these complex infections and the ability of Lyme bacteria to invade tissues and organs.
  • If you would like to register, please complete the form to the right.
  • To learn more about this program, please read the LDB Tissue Program FAQs. You can also click here to watch a short video about the registration process.
  • Please note: if you are inquiring about a donation from surgery or post-mortem that must occur within the next week, please call our 24/7/365 NDRI fulfillment coordination staff at (800) 222-NDRI (6374).
Things to Consider:
  • Your family and loved ones must be aware of your wish to donate.
  • Only organs and tissues needed for research will be recovered.
  • NDRI covers all costs associated with coordination of organ and tissue recovery. 
  • For post mortem donation, funeral and cremation costs remain the responsibility of the family decision makers.
  • For surgical donations, costs associated with the surgery remain the responsibility of the patient.
For more information or immediate assistance, call:

(800) 222-NDRI (6374), Option 5 or
E-mail: PrivateDonor@ndriresource.org

 
If You Are a Provider:

Click here for more information about referring a patient.

Download additional resources:
About NDRI

Founded in 1980, the National Disease Research Interchange (NDRI), is a non-profit 501(c)(3) that ships thousands of biospecimens annually from our nationwide procurement network to researchers worldwide. NDRI is the nation’s leading source of human tissues, cells, and organs for scientific research. The National Institutes of Health (NIH) has provided funding to NDRI since 1987.

NDRI is accredited by the College of American Pathologists (CAP) as a biorepository and a sponsor facility. This biorepository accreditation meets the standards for human biospecimen collection, storage, informatics, and distribution defined by the CAP Biorepository Accreditation Program.

biobank tissue process ndri version

biobank tissue process ndri version
Become a tissue donor! Fill out our form below.

Eligibility for the Lyme Disease Biobank Tissue Collection Program:

* Must be 18 years old or older. 

* Must reside within the continental U.S.

* Must be diagnosed with Lyme disease by a healthcare provider.

* Additional information including medical history, laboratory testing results, and consultation with clinical experts will be part of the LDB eligibility determination process.

Thank you for completing the form and your interest in the Lyme Disease Biobank Tissue Program! NDRI's Private Donor team will be in touch with you soon!

NDRI is a Not-For-Profit (501c3) Corporation.