Lyme Disease Biobank Tissue Program

The Lyme Disease Tissue Collection Program is a collaborative initiative of the Lyme Disease Biobank (LDB), National Disease Research Interchange (NDRI), and MyLymeData Patient Registry. We are collecting surgical and post-mortem tissue samples and detailed information from people with Lyme disease and other tick-borne infections to aid in accelerating research efforts related to these diseases.

• These tissue samples will be made available to approved researchers. These tissues provide the medical community with a much-needed resource to better understand these complex infections and the ability of Lyme bacteria to invade tissues and organs.
• If you would like to register, please complete the form to the right.
• To learn more about this program, please read the LDB Tissue Program FAQs.
• Please note: if you are inquiring about a donation from surgery or post-mortem that must occur within the next week, please call our 24/7/365 NDRI fulfillment coordination staff at (800) 222-NDRI (6374).
• You can also watch a 2 minute video about the registration process below.

Hear from a Donor:

NDRI chats with Meghan Bradshaw, a Lyme Disease Patient Advocate discussing her commitment to being a living donor for the Lyme Disease Biobank

Things to Consider:

• Your family and loved ones must be aware of your wish to donate.
• Only organs and tissues needed for research will be recovered.
• NDRI covers all costs associated with coordination of organ and tissue recovery. 
• For post mortem donation, funeral and cremation costs remain the responsibility of the family decision makers.
• For surgical donations, costs associated with the surgery remain the responsibility of the patient.

For more information or immediate assistance, call:

(800) 222-NDRI (6374), Option 5 or
E-mail: PrivateDonor@ndriresource.org

If You Are a Provider:

Click here for more information about referring a patient.

Download additional resources:

• LDB Tissue Flyer
• MyLymeData Brochure

About NDRI

Founded in 1980, the National Disease Research Interchange (NDRI), is a non-profit 501(c)(3) that ships thousands of biospecimens annually from our nationwide procurement network to researchers worldwide. NDRI is the nation’s leading source of human tissues, cells, and organs for scientific research. The National Institutes of Health (NIH) has provided funding to NDRI since 1987.

NDRI is accredited by the College of American Pathologists (CAP) as a biorepository and a sponsor facility. This biorepository accreditation meets the standards for human biospecimen collection, storage, informatics, and distribution defined by the CAP Biorepository Accreditation Program.