Lyme Disease Biobank

Lyme Disease Biobank Tissue Collection Program

The Lyme Disease Tissue Collection Program is a collaborative initiative of Lyme Disease Biobank (LDB), National Disease Research Interchange (NDRI), and MyLymeData Patient Registry. We are collecting surgical and post-mortem (after death) tissue samples and detailed information from people with Lyme disease and other tick-borne infections to accelerate research efforts related to these diseases.

  • These samples will be made available to approved researchers, providing the medical community with a much-needed resource to better understand these complex infections and how Lyme bacteria enter tissue.
  • If you would like to learn more, please click the “Get Started” button below and complete the form.
  • IMPORTANT: if you are inquiring about a donation, from surgery or post-mortem, that must occur within the next week, call our 24/7/365 NDRI fulfillment coordination staff at (800) 222-NDRI (6374), option 5.
  • You can also watch a 2-minute video about the registration process below.

“If you have chronic Lyme and want to help researchers get answers to this terrible disease, PLAN AHEAD. Register to donate your tissue now!”

– Colonel Nicole Malachowski (USAF, Ret.)

“My family knows that after I die, my tissues will be donated to Lyme Disease Biobank to provide researchers with the vital material they need to solve this horrible disease. I urge anyone with chronic Lyme to register with NDRI today. Let’s end this suffering together.”

Kirsten Stein

Eligibility Requirements:

  • Must be 18 years old or older.
  • Must reside within the continental U.S.
  • Must be diagnosed with Lyme disease by a healthcare provider.
  • Additional information including medical history, laboratory testing results, and discussion with clinical experts will be part of LDB’s eligibility process.

    Things to Consider:

    • Your family and loved ones must be aware of your wish to donate.
    • Only tissue needed for research will be recovered.
    • LDB covers all costs associated with coordination of tissue recovery.
    • For post-mortem donation, funeral and cremation costs remain the responsibility of the family.
    • For surgical donations, costs associated with the surgery remain the responsibility of the patient.

    Hear More About The Program

    For more information or immediate assistance, call:

    (800) 222-NDRI (6374), Option 5 or
    E-mail: PrivateDonor@ndriresource.org
     

    Download additional resources:

    Hear From A Donor

    Lyme Disease Biobank Tissue Collection Program

    The Lyme Disease Tissue Collection Program is a collaborative initiative of Lyme Disease Biobank (LDB), National Disease Research Interchange (NDRI), and MyLymeData Patient Registry. We are collecting surgical and post-mortem (after death) tissue samples and detailed information from people with Lyme disease and other tick-borne infections to accelerate research efforts related to these diseases.

    • These samples will be made available to approved researchers, providing the medical community with a much-needed resource to better understand these complex infections and the ability of Lyme bacteria to invade tissues and organs.
    • If you would like to learn more, please click the “Get Started” button below and complete the form.
    • Please note: if you are inquiring about a donation, from surgery or post-mortem, that must occur within the next week, please call our 24/7/365 NDRI fulfillment coordination staff at (800) 222-NDRI (6374), option 5.
    • You can also watch a 2-minute video about the registration process below.

    “If you have chronic Lyme and want to help researchers get answers to this terrible disease, PLAN AHEAD. Register to donate your tissue now!”

    – Colonel Nicole Malachowski (USAF, Ret.)

    “My family knows that after I die, my tissues will be donated to Lyme Disease Biobank to provide researchers with the vital material they need to solve this horrible disease. I urge anyone with chronic Lyme to register with NDRI today. Let’s end this suffering together.”

    Kirsten Stein

    Eligibility Requirements:

    • Must be 18 years old or older.
    • Must reside within the continental U.S.
    • Must be diagnosed with Lyme disease by a healthcare provider.
    • Additional information including medical history, laboratory testing results, and consultation with clinical experts will be part of the LDB eligibility determination process.

      Things to Consider:

      • Your family and loved ones must be aware of your wish to donate.
      • Only organs and tissues needed for research will be recovered.
      • LDB covers all costs associated with coordination of organ and tissue recovery.
      • For post-mortem donation, funeral and cremation costs remain the responsibility of the family decision makers.
      • For surgical donations, costs associated with the surgery remain the responsibility of the patient.

      Hear More About The Program

      For more information or immediate assistance, call:

      (800) 222-NDRI (6374), Option 5 or
      E-mail:
      PrivateDonor@ndriresource.org

      Download additional resources:

      Hear From A Donor