Lyme Disease Biobank Tissue Program - Provider Information

NDRI is partnering with the Lyme Disease Biobank (LDB) to collect surgical and post-mortem tissues and associated clinical information from eligible individuals with Lyme disease or other tick-borne infections. These tissues will be made available to approved investigators, providing the research community with a much-needed resource to better understand these complex infections.

Donors can also elect to enroll in the MyLymeData Patient Registry and connect their data with their tissue sample.

Patient Eligibility Requirements

• Must be 18 years of age or older
• Must reside in the continental US
• Must be diagnosed with Lyme disease by a healthcare provider
• Clinical history and laboratory testing results will be reviewed to determine eligibility.

How Can Providers Help?

Providers can get involved by telling their patients about this program and giving them the resources to register. 

• Download the LDB Tissue Flyer
• Download the Tissue Program FAQs to give to your patients
• Download the MyLyme Data Brochure to give to your patients
• Download the posters presented at the 2018 LDA Conference and the 2019 LDA Conference to learn more about the program
• Download a slide to use in your talks

Patients interested in donating tissues can register by:

• Visiting ndriresource.org/lyme-disease
• Contacting NDRI’s Private Donor Program

      Email: PrivateDonor@ndriresource.org or Call: (800) 222 – 6374 option 5

For More Information:

E-mail: PrivateDonor@ndriresource.org or info@lymebiobank.org

About NDRI

Founded in 1980, the National Disease Research Interchange (NDRI), is a non-profit 501(c)(3) that ships thousands of biospecimens annually from our nationwide procurement network to researchers worldwide. NDRI is the nation’s leading source of human tissues, cells, and organs for scientific research. The National Institutes of Health (NIH) has provided funding to NDRI since 1987.

NDRI is accredited by the College of American Pathologists (CAP) as a biorepository and a sponsor facility. This biorepository accreditation meets the standards for human biospecimen collection, storage, informatics, and distribution defined by the CAP Biorepository Accreditation Program.