Lymphangioleiomyomatosis (LAM) Tissue Repository

The LAM Tissue Collection Program is a collaborative initiative of The LAM Foundation and the National Disease Research Interchange (NDRI). We are collecting surgical tissue samples and detailed information from LAM patients to aid in accelerating research efforts related to this disease.

  • These tissue samples will be made available to approved LAM researchers, providing them with a much-needed resource in furthering our effort to find a cure for LAM.
  • If you would like to learn more or register to donate tissue to LAM research, please complete the form to the right.

 

Things to Consider:
  • Only surgical tissue needed for research will be recovered.
  • NDRI covers all costs associated with coordination of tissue recovery. 
  • Paperwork with NDRI must be completed prior to surgery.
About NDRI

Founded in 1980, the National Disease Research Interchange (NDRI), is a non-profit 501(c)(3) that ships thousands of biospecimens annually from our nationwide procurement network to researchers worldwide. NDRI is the nation’s leading source of human tissues, cells, and organs for scientific research. The National Institutes of Health (NIH) has provided funding to NDRI since 1987.

NDRI is accredited by the College of American Pathologists (CAP) as a biorepository and a sponsor facility. This biorepository accreditation meets the standards for human biospecimen collection, storage, informatics, and distribution defined by the CAP Biorepository Accreditation Program.

For more information regarding tissue donation with NDRI, call:

(800) 222-NDRI (6374), Option 5 or email: privatedonor@ndriresource.org

Learn more about the impact of LAM research

lamfoundation

lamfoundation
Eligibility for the LAM Tissue Collection Program:

* Must be 18 years old or older. 

* Must reside within the continental U.S.

* Must have confirmed diagnosis  of LAM by a healthcare provider.

* Additional information including medical history, laboratory testing results, and consultation with clinical experts will be part of the LAM eligibility determination process.

Please note that NDRI does NOT have a whole body donation program. 

Become a Donor
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For more information about The LAM Foundation, visit: https://www.thelamfoundation.org/

NDRI is a Not-For-Profit (501c3) Corporation.