The LAM Foundation

Lymphangioleiomyomatosis (LAM) is a rare lung disease that usually strikes women during the prime of their lives. Known as LAM for short, this disease is characterized by an abnormal growth of smooth muscle cells, especially in the lungs, lymphatic system and kidneys. Unregulated growth of these cells can lead to loss of lung function, accumulation of lymph rich-fluid in the chest and abdomen and growth of tumors in the kidneys. There is currently no cure for the disease and patients typically require a lung transplant as the disease progresses.

LAM Foundation

The LAM Tissue Collection Program is a collaborative initiative of the LAM Foundation and the National Disease Research Interchange (NDRI). We are collecting surgical tissue samples and detailed information from LAM patients to aid in accelerating research efforts related to this disease.

  • These tissue samples will be made available to approved LAM researchers, providing them with a much-needed resource in furthering our effort to find a cure for LAM.
  • If you would like to learn more or register to donate tissue to LAM research, please complete the form below.

Things to Consider:

  • Only surgical tissue needed for research will be recovered.
  • NDRI covers all costs associated with coordination of tissue recovery.
  • Paperwork with NDRI must be completed prior to surgery.

Please note that NDRI does NOT have a whole body donation program.

For more information about The LAM Foundation, visit: https://www.thelamfoundation.org/

Lymphangioleiomyomatosis (LAM) is a rare lung disease that usually strikes women during the prime of their lives. Known as LAM for short, this disease is characterized by an abnormal growth of smooth muscle cells, especially in the lungs, lymphatic system and kidneys. Unregulated growth of these cells can lead to loss of lung function, accumulation of lymph rich-fluid in the chest and abdomen and growth of tumors in the kidneys. There is currently no cure for the disease and patients typically require a lung transplant as the disease progresses.

LAM Foundation

The LAM Tissue Collection Program is a collaborative initiative of the LAM Foundation and the National Disease Research Interchange (NDRI). We are collecting surgical tissue samples and detailed information from LAM patients to aid in accelerating research efforts related to this disease.

  • These tissue samples will be made available to approved LAM researchers, providing them with a much-needed resource in furthering our effort to find a cure for LAM.
  • If you would like to learn more or register to donate tissue to LAM research, please complete the form below.

Things to Consider:

  • Only surgical tissue needed for research will be recovered.
  • NDRI covers all costs associated with coordination of tissue recovery.
  • Paperwork with NDRI must be completed prior to surgery.

Please note that NDRI does NOT have a whole body donation program.

For more information about The LAM Foundation, visit: https://www.thelamfoundation.org/